Public asked for their ideas about wellbeing in Galway City

Public asked for their ideas about wellbeing in Galway City-image

Tuesday, 26 May 2015

Members of the Galway City Community Network and interested members of the public are invited to a unique workshop on Saturday, 6 June, which will focus on wellbeing in Galway City. Organised by the Galway City Community Network (GCCN) and NUI Galway, the aim of the interactive event is to develop a ‘Statement of Wellbeing’ for current and future generations in Galway City. The workshop runs from 9am – 1pm in the Arts Millennium Building, NUI Galway. While traditional economic models have often equated wellbeing with economic growth, new research is showing the importance of the wider question of what really matters in life. This in turn has triggered an ongoing debate about how best to measure and foster individual and societal wellbeing. Tommy Flaherty, GCCN Chairperson said: “Wellbeing is something we should all be aiming for. It is more than the absence of ill-health. It is about how we plan our communities, our cities, and our environment so we can have a sense of wellbeing. We want to get individuals, groups and organisations from the community, voluntary and environmental sectors in Galway involved. We want them to share their visions for how we can embed wellbeing in Galway city for ourselves, our children and our children’s children.” The workshop will use a technique called ‘collective intelligence’ to allow the gathering and structuring of ideas to inform the wellbeing statement. Michael Hogan, co-leader of the Health and Wellbeing research group at the Whitaker Institute, NUI Galway said: “Galway is such a wonderful place, we’re so delighted to be able to contribute to the great work that is ongoing across the city. Our role at this collective intelligence event is to act as facilitators - the people who come to our event have all the intelligence.” Michael Hogan added: “This work is difficult in part because when many minds converge on the issue of understanding and promoting wellbeing, many different ideas emerge and research is slow to establish coherence. Increasingly recognised as important is empowering groups to work together to establish a shared vision of wellbeing that they can act upon – and promoting systems thinking in groups such that they can understand how their different wellbeing objectives relate to one another. Notably, international best practice suggests that understanding well-being and developing well-being actions is best approached by focusing on the key strategic objectives and goals that guide our collective efforts to enhance wellbeing.” International perspective will also be brought to the event with the participation of Professor Benjamin Broome of Arizona State University. Commenting on the logistics of the event, Ann Irwin GCCN Co-ordinator, said: “The workshop will consist of six working groups of about 20 people each. In the working group participants will be asked to brainstorm a series of ideas that will eventually lead us to a Wellbeing Statement for Galway. This process will be facilitated by an experienced facilitator and start at 9am. Anyone interested is asked to register using the online registration process as soon as possible as there is a trigger question that all participants are asked to answer before the workshop. This enables the facilitators to prepare the session. All the details are on the website www.galwaycitycommunitynetwork.ie.” Galway City Community Network is the Public Participation Network for Galway City which ensures extensive input by organisations and groups in the community, voluntary and environmental sectors into local decision and policy making bodies including at local authority level. -ends- 

>> Read full story about Public asked for their ideas about wellbeing in Galway City

Maire Geoghegan-Quinn Launches NUI Galway Centre for Adult Learning and Professional Development

Maire Geoghegan-Quinn Launches NUI Galway Centre for Adult Learning and Professional Development-image

Wednesday, 27 May 2015

NUI Galway’s Centre for Adult Learning and Professional Development was officially launched by Dr Maire Geoghegan-Quinn recently. Offering a range of part-time, flexible programmes for adult learners, the Centre combines the best in educational technologies to provide an education that meets the personal and professional needs of adult learners. Commenting on the changing education landscape, Centre Director, Nuala McGuinn said: “The way people are learning has to change to respond to people’s lifestyle and their working circumstances. Workers are commuting long distances and working irregular hours so the challenge is to be able to respond to their needs in a flexible manner.” Maintaining all that has been the hallmark of Adult Education since its early days of outreach education in the 1970s the Centre has refocused its services in line with the University’s new strategic plan. One of the objectives of the new plan is to grow the range of flexible programmes and increase the overall percentage of adult learners at the University to 20% by 2020. Speaking at the launch Dr Maire Geoghegan-Quinn said: “Lifelong learning is important for adults and an essential requirement in a person’s working life. Never before has the need to re-skill, up-skill and convert to new roles throughout our working lives been as important as it is today. At European level, a government target to is to have a 15% representation of adult learners in higher education and I would like to congratulate NUI Galway on its strategic objective to go beyond this target.” Dr Jim Browne, President of NUI Galway said: “The University’s long history in the provision of adult education programmes, which saw lecturers travelling to outreach locations late in the evening to bring university education closer to their homes. There has been a huge advance in teaching technologies and flexibility available to adult learners both in the range of courses on offer and the modes of delivery used. I would like to congratulate the Centre on their work to date and also on their recent achievement under the Springboard programme where NUI Galway received over 100 places as part of the Springboard and ICT Skills incentive.” Programmes in Innovation Management, Technology Commercialisation, Lean and Quality Systems, Medical Device Science and Automation and Control are now offering funded places for the unemployed providing an opportunity to re-skill and return to the workplace. For more information contact the Centre for Adult Learning and Professional Development at adultlearning@nuigalway.ie or 091 495241, or visit the Centre’s Facebook page at www.facebook.com/nuigalway.adulted. -Ends-

>> Read full story about Maire Geoghegan-Quinn Launches NUI Galway Centre for Adult Learning and Professional Development

NUI Galway MA student invited to meet UN Secretary General Ban Ki-Moon

NUI Galway MA student invited to meet UN Secretary General Ban Ki-Moon-image

Wednesday, 27 May 2015

NUI Galway Global Women’s Studies student, Faith Amanya, was one of small group invited to meet with UN Secretary General Ban Ki-Moon at the United National Training School Ireland in the Curragh on Monday. Faith Amanya is currently undertaking a Masters in Gender, Globalisation and Rights with the Centre for Global Women’s Studies in School of Political Science and Sociology at NUI Galway. Ms Amanya who is a local government development officer in western Uganda is one of two Irish Aid scholars in the Global Women’s Studies Masters programme this year. As part of her Masters studies, Faith recently completed a six-week professional placement with the Irish Consortium on Gender Based Violence, which brings together Ireland’s leading development and humanitarian organisations, relevant Government departments and the Irish Defence Forces to work in partnership to tackle gender based violence. In this context, Faith had contributed to training sessions at the United National Training School Ireland (UNTSI) for members of the Irish Defence Forces getting ready to go on UN peace support operations.   On learning that the Irish Defence Forces had invited Faith to return to the Curragh to meet with Mr Ban Ki-Moon, Ms Amanya, said: “I am grateful and honoured. I am passionate about stopping gender based violence and engaging men in this work. Sharing my experience with future Irish peace keepers at UNTSI and being invited to meet the UN Secretary General during his visit to Ireland are very special experiences for me.” The Masters in Gender Globalisation and Rights is the flagship programme of the Centre for Global Women’s Studies. Course director, Dr Niamh Reilly, said: “Faith’s experience is a wonderful illustration of the strengths of our Masters programme, which brings together recent graduates and mature students from Ireland and overseas to gain the knowledge and hands-on experience necessary to advance gender equality and human rights in responses to global issues.” The Centre for Global Women’s Studies was recently awarded a major research contract with Department for International Development (UK) to examine the social and economic costs of violence against women and girls in Ghana, Pakistan and South Sudan. -ends-   

>> Read full story about NUI Galway MA student invited to meet UN Secretary General Ban Ki-Moon

Discussion Forum at NUI Galway to Focus on Spending Socially

Discussion Forum at NUI Galway to Focus on Spending Socially-image

Thursday, 28 May 2015

NUI Galway will host a unique, participatory and interactive event that explores the potential of public procurement to support Ireland’s budding social economy. This discussion forum, ‘Spending Socially - Achieving Social Value through Public Procurement’ will take place on Monday, 15 June. The event was borne out of an identified need to support local enterprises to engage in public procurement process discovered while exploring the possibilities of setting up a community café in a new building at NUI Galway. Derek Nolan T.D. will open the event which will bring together a unique range of experts in the fields of public procurement and the social economy. Speakers will include members from the Office for Government Procurement, the Strategic Investment Board, the NOW Project, and the 'Ready for Business' Organisation and many more experts and advocates. The aim of the discussion forum is to explore the potential uses of social clauses in public contracts and to encourage a discussion on the social benefits that can be achieved through targeted government spending. The event will explore the procurement landscape in Ireland with a view to understanding how social enterprises could be supported to offer their services and bid for tenders. Throughout this discussion a particular focus will be placed on how to improve employment opportunities for marginalized groups, most specifically, persons with disabilities. All are welcome to attend this event particularly those with interest in supporting social and micro enterprises, community organisations, service providers and entrepreneurial individuals, local development networks, students, anyone with interest in supporting local business and enterprise and those involved in public procurement whether as an advisor, policy-maker or tenderer.  The forum is being organised by the Centre for Disability Law and Policy and the Community Knowledge Initiative (CKI) at NUI Galway, and Employ Ability Galway, and is funded by the Irish Research Council under its New Foundations Scheme. For more information and to register please see: https://spendingsocial.eventbrite.com. -ends- 

>> Read full story about Discussion Forum at NUI Galway to Focus on Spending Socially

NUI Galway Hosts 30th Topology and its Applications Conference

NUI Galway Hosts 30th Topology and its Applications Conference -image

Thursday, 28 May 2015

NUI Galway will host the 30th Summer Conference on Topology and its Applications (SumTop30) from 23-26 June. This is the first time this conference will take place in Ireland. Hosted by NUI Galway’s School of Mathematics, Statistics and Applied Mathematics, SumTop30 is an annual major international event in mathematical research and is held primarily in North America. With an expected attendance of more than 150 international delegates, this event will distinguish Ireland as a model of excellence in mathematical research communication, mentorship and collaboration. This year the conference has an ambitious scientific programme that showcases state-of-the-art research in topology with particular emphasis on connections and applications. Speakers this year include some of the most exciting new talents, alongside the most distinguished players in the field. With scientific excellence and its communication as a primary objective, the conference will present a diverse range of speakers in terms of career-point, geographical location, research interest and gender. Keynote speakers include Jan van Mill, University of Amsterdam, Justin Tatch Moore, Cornell University and Ross Geoghegan, Binghamton University, New York. The 18th Galway Topology Colloquium will also take place at NUI Galway on Monday, 22 June. The Colloquium is distinguished by its particular focus on graduate and early-career researchers, providing a relaxed and informal environment in which to discuss and develop research interests. Special features for the Colloquium include working groups of participants to prepare in particular for the SumTop30 workshops, and also a panel discussion whose panel will be populated by key SumTop30 invited speakers. Dr Aisling McCluskey, Conference Co-organiser and Senior Lecturer with NUI Galway’s School of Mathematics, Statistics and Applied Mathematics, said: “The conference with its broad scientific focus indicates the strength of Ireland’s research position within pure mathematics generally, and within topology and its applications specifically on the world stage. It will showcase a diverse range of topological research with applications that will attract young graduates to a correspondingly diverse range of career options within STEM particularly.” The conference is sponsored by Science Foundation Ireland, NUI Galway, National Science Foundation (USA), Fáilte Ireland and Irish Mathematical Society. -ends-

>> Read full story about NUI Galway Hosts 30th Topology and its Applications Conference

Conference Highlights the Social, Cultural and Economic Benefits of Investing in the Creativity of Young People

Conference Highlights the Social, Cultural and Economic Benefits of Investing in the Creativity of Young People-image

Thursday, 28 May 2015

Research findings presented at a conference today (Thursday, 28 May) in NUI Galway reveal that arts and creative activities are of real benefit to young children. As well as building confidence, and encouraging critical reflection and creative thinking, they also provide a powerful base for team working, problem solving and future development. The research was carried out by the UNESCO Child and Family Research Centre at NUI Galway and looked at an innovative three-year project, BEAST!, developed and operated by Baboró International Arts Festival for Children in Galway. BEAST! (Baboró: Environment, Arts, Science and Technology) took the form of an educational arts and science initiative for primary school children, aged predominately between 9 and 12 years. The project worked with schools on using the arts as a teaching methodology to achieve a higher profile for science, technology, engineering and mathematics (STEM) subjects. Some of the exercises involved the pupils learning about energy usage and climate change with Dr Edward Curry, a scientist from Insight at NUI Galway.  They carried out energy audits in their homes to learn ways of reducing their energy footprint and they also worked with artists to create cartoon animations and storyboards as a means of expressing what they’d learnt. These exercises allowed science to be taught in a more practical and accessible way. Commenting on result findings, which will be presented at the conference ‘Opening the Door to Creative Teaching and Learning’ today, Professor Pat Dolan, Director of the UNESCO Child and Family Research Centre at NUI Galway said: “The development of education of children through creativity and the arts should be given equal attention as learning through reading writing and mathematics. Apart from being the gateway to human expression and innovative learning, it affords children the opportunity to see school as a forum for empathy development, resilience building and attainment of mastery and is in essence an ‘antidote’ to classroom bullying. It is imperative that the Department of Education enable and enhance such capacity building in all schools, and particularly for younger students in need of support.” Dr Cormac Forkan who led the social research team at NUI Galway commented that: “At the highest level, the project enabled the children to be reflective in their own activities and to develop critical thinking. Ultimately education is not just about education for a job, it’s about developing critical citizens.” The research findings showed that: There was a high level of engagement in the workshops by children and teachers. Children talked about changes in the ways that they perceived science and showed a deeper understanding of science concepts. Parents noted their children demonstrated an increasingly positive attitude towards science and that their thinking about the role of science had changed. Children were taught about various art forms in a highly engaging and collaborative way, allowing children to learn about the societal value of the arts and about the importance of collaborating and sharing with others. Teachers were very positive about the benefits of the more open, creative and flexible approach adopted by the science and arts practitioners and stated they were adapting their own teaching styles, to incorporate cross-curricular and more creative and interactive approaches. The research process provided space to consider and develop a theoretical base for BEAST! from the academic literature, linking the project to concepts such as collaboration, creativity, engagement and participation, creative teaching and creative learning. Creativity is a multi-layered concept that involves multiple actors participating in continuous interactive processes of knowledge sharing, learning and engagement. Embedding an ethos of creativity in the curriculum is not a linear or straightforward process. There are numerous barriers to enhanced creativity that include attitudes towards creativity and knowledge, behaviours established practices, time and resources and others that mediate against improving creativity in the curriculum. Paul Collard, CEO from Creativity, Culture and Education in the UK, is guest speaker at the conference: “Without creative skills, problem-solving skills, collaborative skills and a good work ethic young people will not be able to succeed in the world of employment. Now is the time to start thinking about how we reimagine education to put the development of these skills at the heart of the curriculum in order to develop the young people we need, to build the society of tomorrow.” The conference is aimed at parents, teachers and anyone interested in improving levels of confidence, creative and critical thinking and problem solving in primary school children. Speakers at the conference include Professor Pat Dolan, UNESCO Chair and Director of the UNESCO Child and Family Research Centre at NUI Galway; Dr Cormac Forkan, NUI Galway; Paul Collard, CEO of Creativity, Culture and Education and Lali Morris and Teenagh Cunningham from Baboró. Delegates will also have an opportunity to meet with pupils, artists, scientists and teachers who took part in the project to see the work they created. Baboró’s BEAST! conference, ‘Opening the Door to Creative Teaching and Learning’, takes place on Thursday, 28 May, at the Lifecourse Building, NUI Galway from 10am to 4pm. More info at http://www.baboro.ie/events. Enquiries to the Baboró office on 091 562667 or beast@baboro.ie  The BEAST! project has been funded by NUI Galway, Science Foundation Ireland, The Ireland Funds, Galway City and County Councils and Galway Local Enterprise. -ends-

>> Read full story about Conference Highlights the Social, Cultural and Economic Benefits of Investing in the Creativity of Young People

April 2015

Enactus NUI Galway Project Launch and Showcase

Enactus NUI Galway Project Launch and Showcase-image

Wednesday, 1 April 2015

Students of Enactus NUI Galway recently held a project launch and showcase event. Enactus is a global student-lead initiative where students, along with the guidance of business and faculty advisors, create projects which benefit society socially, economically and environmentally and in doing so engage members of society. The recent event gave Enactus students the opportunity to present this year’s four projects, including the Wallflower Initiative, Bike Back, Eat Your Words and TARA, as well as the future plan for these projects. NUI Galway was one of the founding Irish teams of Enactus Ireland and this year will mark its fourth year of involvement. Guided by academic advisors and business experts, participating students from all disciplines form a team on their university campus and apply business concepts to create and implement community empowerment projects around the globe. The current Team Leader and master’s student at NUI Galway, Elizabeth O’Brien, has been involved in Enactus for three years and also attended the Enactus World Cup 2014 which took place last year in Beijing, China. Elizabeth said: “Enactus has given me the opportunity to improve our local community but also enhance my educational experience. It has helped me to understand special challenges and issues, develop solutions and make a difference in people’s lives. It was an honour to open our launch event and share the good work that we are doing.” Michael Campion, a lecturer at NUI Galway’s J.E. Cairnes School of Business and Economics, and Faculty Advisor for Enactus NUI Galway, said: “The typical student who engages with Enactus is enthusiastic and passionate about making things better for others. Designing and developing Enactus projects is not easy due to the criteria laid down and it challenges students to be creative, enterprising and tenacious. It’s a privilege to work with and support such students in their Enactus endeavours.” In May, Enactus NUI Galway students, along with seven other third-level institutions, will gather at the Chartered Accountants of Ireland in Dublin for the Enactus Ireland National Final 2015. This will give one team the opportunity to travel to Johannesburg, South Africa to represent Team Ireland for this year’s World Cup Final where Enactus students from 36 countries will be represented and each team will present their projects to a judging panel of global business leaders. -Ends-  

>> Read full story about Enactus NUI Galway Project Launch and Showcase

Major investment in human genome research by joint SFI-HRB-Wellcome Trust funding

Major investment in human genome research by joint SFI-HRB-Wellcome Trust funding-image

Wednesday, 1 April 2015

Professor Brian McStay, from, NUI Galway has secured €1.5 funding from the SFI-HRB-Wellcome Trust Biomedical Research Partnership to study uncharacterised regions of the genome that could advance our understanding of a wide range of human diseases.                                         According to Professor McStay, who works in the Centre for Chromosome Biology, School of Natural Sciences at NUI, Galway: "This project will explore some of the unmapped regions of the human genome that play a key role in how ribosomes, which make proteins, are made. We will look at the genetic factors that influence how ribosomes themselves are put together. We know that unregulated ribosome production plays an important role in many types of cancer, so a better understanding of what impacts ribosomes has obvious potential to help our understanding of cancer and a range of human diseases which are collectively termed ribosomopathies." Commenting on the award, Graham Love Chief Executive at the Health Research Board says, "This funding is not easy to get and competition is intense, so Brian’s success should be acknowledged.  Biomedical research like this, which will help us to better understand our fundamental human make up, is central to providing new avenues for scientists to explore in the search for better and more effective treatments." Dr Michael Dunn, Head of Genetics and Molecular Sciences at the Wellcome Trust, adds, "Wellcome Trust Investigators represent some of the very brightest minds in biomedical science.  We are delighted to make an award to Professor Brian McStay whose work aims to address an important aspect of basic chromosome biology that is still poorly understood.  The award provides generous, long-term, flexible funding, which we hope will enable Professor McStay to make significant advances in knowledge in this important field and thereby help the Wellcome Trust to achieve its mission of improving human and animal health." Professor Mark Ferguson, Director General Science Foundation Ireland and Chief Scientific Adviser to the Government of Ireland said,  "The SFI-HRB-Wellcome Trust Partnership supports research into some of the most pressing biomedical and clinical research questions in health, ultimately delivering a social impact by enhancing the quality of patients care.  This joint funding scheme also boosts Ireland’s biomedical research credentials internationally, thereby attracting investment and ultimately creating jobs.  The fact that Professor McStay’s study secured the funding ahead of international competition underlines the quality of the world class research taking place in Ireland." -Ends-

>> Read full story about Major investment in human genome research by joint SFI-HRB-Wellcome Trust funding

Over 200 Primary School Students ‘Graduate’ from NUI Galway

Over 200 Primary School Students ‘Graduate’ from NUI Galway-image

Thursday, 2 April 2015

NUI Galway recently conferred special certificates on the seventh cohort of ‘graduates’ from its Youth Academy, with 225 primary school children from across the western region receiving their certificates. Established in 2012, the Youth Academy aims to inspire entry to university by introducing primary school students and their families to university life. Since its foundation, over 1,000 students have graduated from a variety of  courses on Saturday mornings ranging from Italian to Film Studies, Engineering to English Literature, Cell-EXPLORERS and Kitchen Chemistry to Smart Act-Aisteoirí óga anseo!, and The World of Cops and Robbers to Drama. The Youth Academy runs for a six week period and works with high-ability fourth, fifth and sixth class primary school children to support their learning and academic development, in partnership with their primary schools. Speaking at the event, Registrar and Vice-President of NUI Galway, Professor Pól Ó Dochartaigh, said: “The Youth Academy is a very important initiative by this University. We feel that it responds to the educational needs of our most important young citizens and gives talented young students the opportunity to get experience of learning in a university. NUI Galway is committed to the sharing of knowledge with the wider community and ensuring that the pathways to university are open to all. I hope that initiatives such as the Youth Academy can highlight how the university can and does serve its community, not only here Galway but in society in general.” For further information on the courses and participation please contact Geraldine Marley, NUI Galway Youth Academy Coordinator, at youthacademy@nuigalway.ie. -Ends-

>> Read full story about Over 200 Primary School Students ‘Graduate’ from NUI Galway

Overwhelming Majority of People in Favour of National Registry and Biobank for Autism in Ireland

Overwhelming Majority of People in Favour of National Registry and Biobank for Autism in Ireland-image

Thursday, 2 April 2015

The findings from the national stakeholder consultation process present “compelling evidence of the timely need to create a comprehensive registry and biobank.” 93% of respondents to a national survey believe that a registry and biobank for autism in Ireland is needed, according to the findings from a nationwide stakeholder consultation process launched today on World Autism Awareness Day. The consultation process engaged with all stakeholders affected by or involved with autism or other related neurodevelopmental disorders including self-advocates, families, clinicians, health professionals, service providers, advocacy agencies and researchers. The aim of the initiative is to advance world-class clinical, biomedical and environmental research in Ireland and inform best practice in health, education and service provision for individuals with ASD/ NDD and enable the best possible quality of life. The Autism and Neurodevelopmental Disorders Research Group at Trinity College Dublin partnered with the Irish Centre for Autism and Neurodevelopmental Research (ICAN) at NUI Galway and the US-based Autism Speaks for this initiative. The consultation process was launched following a private members bill, The Autism Bill, brought forward to Government in 2013 and the National Review of Autism Services in 2012, both of which called for the creation of a national database for Autism Spectrum Disorders (ASD) and neurodevelopmental disorders (NDD). The authors of the report and the respondents believe the biobank and registry would support policy decisions by providing reliable information on the scale of these conditions in Ireland as well as their social and economic costs. The key concern most respondents had was around the area of data privacy and protection and in particular who would have access to the data. Currently in Ireland there is no effective health information system or biobank gathering essential data for ASD/NDD, nor are there any accurate prevalence rates, despite the fact that ASD and NDD are lifelong conditions which have significant implications for families, state services, society and the individuals themselves. Professor of Child and Adolescent Psychiatry at Trinity, Louise Gallagher said: “It is clear from the responses of those who took part in the national survey and the regional town hall meetings that there is a huge and positive appetite for the establishment of a registry and biobank for Autism in Ireland. Parents said it was the first time they had ever been asked what would make their child’s life better.” Professor Gallagher continued: “It is now timely to act and invest resources to build this registry and biobank with the potential to alleviate the rising financial and resource challenge on Irish public health system and align with upcoming government health strategies, e.g. Progressing Disability Services for Children and Young People. This is Ireland’s opportunity to propel world-class research and its application for the public good with an innovative unique registry and biobank for a major public health challenge.” Dr Geraldine Leader, Director of the Irish Centre for Autism and Neurodevelopmental Research at NUI Galway commented that: "The lack of reliable and systematic information on ASD/NDD not only affects children with these conditions but also impacts adolescents, adults and older adults. There are huge gaps in service provisions and care for adults and the elderly with ASD. They can be left undiagnosed, receive inappropriate services or struggle with no access to proper enabling environments which would assist with employment and independent living. The development of an autism specific registry and biobank targeted at the health, educational and long term needs of the Irish autism community will be a vital resource to inform service planning and delivery and will also support a range of important research questions.  The Irish Autism Registry and Biobank will be transformative in accelerating the pace of autism research in Ireland.” June O’Reilly, parent and chairperson of the stakeholder advisory group spoke about the benefits from a parent’s perspective: “When you receive a diagnosis for your child there are so many questions that you search for answers to in order to maximize your child’s potential. Questions like what interventions should my child be getting, what type of education would be best, or how will they progress as they get older.  The registry gives all stakeholders an opportunity to work in partnership and address these questions.  It will help indicate the most effective approaches, throughout the lifespan from early intervention and treatments for young children through to adulthood, giving informed feedback to parents and stakeholders about best outcomes.” She continued: “I am excited about the registry and biobank as I see it impacting best-practice service provision and education for our children, leading to research discoveries in new treatments and empowering our children who have immensely inspirational strengths and talents.” Dr Amy Daniels, Assistant Director of Public Health Research from the US-based Autism Speaks said: "We are excited to present these findings from the stakeholder consultation, as they document an overwhelming support from the community for developing a national registry for autism and related neurodevelopmental disabilities in Ireland. From the perspective of the advocacy community, our hope is that the registry will be a valuable tool for informing how best to enhance services and the quality of life for individuals with autism and their families now and in the future." The collaborative research team are currently in the process of developing and implementing a pilot registry and are working on this with OpenApp, who provide Quality Assurance and Disease Registry type software solutions for Healthcare within the Irish and other health service settings. The full report on the Consultation for a National registry and Biobank for Autism and Neurodevelopmental Disorders is available here: www.iarb.ie/national-stakeholder-consultation-report/  -Ends-  

>> Read full story about Overwhelming Majority of People in Favour of National Registry and Biobank for Autism in Ireland

<< < 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 93 94 95 96 97 98 99 100 101 102 103 104 105 106 107 108 109 110 111 112 113 114 115 116 117 118 119 120 121 122 123 124 125 126 127 128 129 130 131 132 133 134 135 136 137 138 139 140 141 142 143 144 145 146 147 148 149 150 151 152 153 154 155 156 157 158 159 160 161 162 163 164 165 166 167 168 169 170 171 172 173 174 175 176 177 178 179 180 181 182 183 184 185 186 187 188 189 190 191 192 193 194 195 196 197 198 199 200 201 202 203 204 205 206 207 208 209 210 211 212 213 214 215 216 217 218 219 220 221 222 223 224 225 226 227 228 229 230 231 232 233 234 235 236 237 238 239 240 241 242 243 244 245 246 247 248 249 250 251 252 253 254 255 256 257 258 259 260 261 262 263 264 265 266 267 268 269 270 271 272 273 274 275 276 277 278 279 280 281 282 283 284 285 286 287 288 289 290 291 292 293 294 295 296 297 298 299 300 301 302 303 304 305 306 307 308 309 310 311 312 313 314 315 > >>

Press member?

Visit our press centre

Connect & share