Current Studies

Below are the studies currently running within the Centre for Pain Research that are recruiting participants. If you are interested in taking part, details on how to make contact are given with each study. 


Lending an Ear: iPEER2Peer plus Teens Taking Charge online self-management to empower children with Arthritis.

Childhood arthritis is common and makes everyday activities difficult for young people. It is a chronic illness that can cause children to experience pain, fatigue and emotional upset. This makes it more difficult for children to see friends and do enjoyable activities.

When children become teenagers they start making more choices about their health care. But most teens do not learn how to take care of their arthritis on their own or get the help they need to be able to do so. Many teenagers with arthritis have also never met another teen living with arthritis. This is where online programmes and peer mentoring can help. Canadian researchers developed “Teens Taking Charge (TTC) Managing Arthritis Online” and “iPeer2Peer” to help teens learn to make decisions about their health, meet and be inspired by other young people living with arthritis. Teens who have gone through the Teens Taking Charge and iPeer2Peer programmes showed improvements in their ability to take care of their health, their understanding of arthritis and they have less pain.

The Centre for Pain Research team in 2016 worked with Irish teenagers living with arthritis, their parents and health care providers, using individual and focus group interviews; and they expressed interest in both programmes. The ‘Lending an Ear’ study will pilot test whether an integration of iPeer2Peer with an Irish version of Teens Taking Charge is something Irish teens will use and be helpful in teaching teenagers to take better care of their arthritis, (i.e., is it effective and feasible?).

The overall goal of this combined programme is to improve the quality of life of Irish adolescents with juvenile idiopathic arthritis (JIA).

This project is a collaborative partnership with Dr. Jen Stinson’s team in SickKids Hospital Tornoto and key stakeholders to ensure that it will sustainable even after the research part is finished.

The Paediatric Rheumatologist to patient ratio for Irish children is the second lowest in Europe.

This project will pilot an Irish adaptation of the Canadian “Teens Taking Charge (TTC): Managing Arthritis Online” programme combined with novel peer mentoring (iPeer2Peer).

iPeer2Peer uses Skype conversations between young adults with JIA and adolescents with JIA by guiding the teens through the TTC,12 module, program. While both TTC and iPeer2Peer individually have been found to be effective in improving JIA-related knowledge and self-management, they have not been combined before. We hope in putting them together we will see even better results, as we know individual tailoring is crucial to meet adolescents’ needs more effectively.

So after ‘Lending an Ear’ (36 months starting in September 2017) the end product will be a culturally appropriate clinical tool developed in partnership with adolescents with JIA, their parents, health professionals and JIA organizations (Arthritis Ireland and iCAN), that will overcome current barriers to accessing self-management care and peer support.

So far we have recruited and trained a Young Person Advisory Panel (YPAP) who will work with us throughout the project to ensure the Teens with JIA continue to have a voice that is listening to. 

February 2018 we will be filming 4 Irish videos to add to the TTC website in Dublin and Galway.

March – May 2018 we will be recruiting young adults (18-25 year olds) who lived with JIA through their adolescence to attend a 2 day training and then receive on-going support as peer mentors for the research and possibly beyond.

Summer 2018 we will be recruiting 60 families, with 12-18 year olds teens with JIA, to work with us in a pilot Randomised Control Trail.

See our recruitment poster below

If you are interested in becoming involved in any aspect of our project please contact:

siobhan.ohiggins@nuigalway.ie

 


 

The Pain Course

The Pain Course is designed to provide good information and skills for managing chronic pain, anxiety, and low mood.  The purpose of the current research project is to evaluate the effectiveness of an online, cognitive-behavioural therapy (CBT) programme, the Pain Course, which was developed at the eCentreClinic, MacQuarie University, Sydney, Australia, to improve psychological functioning and well-being in people who suffer with chronic pain. The programme has been examined in several clinical trials involving hundreds of Australians with chronic pain.  The results have been very encouraging with participants reporting significant reductions in their disability, anxiety and depression levels.  This is the first major trial of the Pain Course in Ireland and will be conducted in collaboration with the research team at MacQuarie University.

The Pain Course comprises 5 online lessons, which provide good information about chronic pain, anxiety, and depression.  You will be asked to complete these lessons over 8 weeks and to complete some simple homework assignments that will help you to remember the material you have learned.  Each lesson provides important information about techniques for managing pain and emotional wellbeing, with illustrated examples of how people learn these techniques.  Each lesson takes about 30 minutes to complete and homework will take a further 4 hours each week.    You will receive weekly emails that give detailed instructions on how to access course materials and progress through the programme.  Weekly contact with a clinician via email and telephone will provide support and guidance throughout the course.

You are eligible to take part in the study if:

  • You are aged 18 years or more;
  • You have pain for at least six months duration;
  • You are resident of Ireland;
  • You have regular access to a computer and to the internet;
  • You are not currently experiencing a psychotic illness;
  • You are not experiencing chronic pain due to malignancy; and
  • You have adequate English language ability.

If you are happy to take part in the study, you will, firstly, be asked to complete some online questionnaires.  Eligible applicants will be contacted by a research team member to conduct a brief telephone interview, discuss the Course and answer your questions.  Next, you will be randomly assigned to one of two groups: one group will undergo the online pain management course immediately (Immediate Access Group) and the other group will not access the programme initially (Control Group), but will have access to the programme after the research project has been completed. 

If you are interested in taking part, please contact Catherine by emailing painresearch@nuigalway.ie, noting "The Pain Course" in the subject line of  the email. GPs, physiotherapists and psychologists who are interested in referring suitable patients to the trial can also use these contact details.

Lending an Ear: iPEER2Peer plus Teens Taking Charge online self-management to empower children with Arthritis