Research 2020

WE ARE RECRUITING PARTICIPANTS FOR THE FOLLOWING STUDIES

Study 1: 

“Dating with a Diagnosis”

“People typically develop MS between the ages of 20-40 – an age range where beginning romantic relationships is an important life concern. While research has explored the experiences of people with MS who are married or in long-term relationships, we do not know about the experiences of those who are beginning a romantic relationship. It is known that dating can be difficult for those with physical disabilities, who may face stigma, negative attitudes or be fearful about requiring care from potential partners. Because MS is a chronic condition, the experiences of those with MS as they begin new relationships is important to understand.

We are looking for 25 people with MS to take part in this study. Participants will be asked to make a short recording once a month, for five months. They will record their thoughts on any aspects of their dating/romantic life that month, whether their MS affected any of their experiences and how they felt about this. Participants upload recording to secure, password-protected file storage, accessible only by the researchers. Recordings will be analysed, and common features and themes developed. Participants will be invited to comment on findings as they are developed"

Dating with a Diagnosis
 
Participant Information Sheet (Dating with MS) 
 

If you have any questions in relation to this study please contact:

Ms. Jackie Fox :  jackie.fox@nuigalway.ie
Dr. Sinead Hynes: sinead.hynes@nuigalway.ie
 

Study 2: 

“A cognitive occupation-based programme for people with multiple sclerosis: A randomised controlled pilot trial to improve cognition and daily functioning for people with multiple sclerosis”.

 “A significant proportion of the 9,000 people in Ireland living with MS have difficulties with cognition (memory, concentration, problem-solving), which impacts on quality of life and the ease with which they complete their daily tasks. The Cognitive Occupation-Based Programme for People with MS (COB-MS) was developed to address the wide-ranging symptoms that present in MS, with an emphasis on the ability to maintain employment, social activities, managing the home and self-care. It is focused on rehabilitation through an individualised cognitive intervention that is run by a qualified occupational therapist.

 The aim of the current research is to evaluate the programme as well as its preliminary effects on cognitive and daily functioning. Thus, we are currently recruiting people living with MS to receive the COB-MS and.

 We are looking to recruit people with MS who fit the following criteria: 1) aged 18 years of age or older, 2) fluent in written and spoken English, 4) experiencing cognitive difficulties, 5) are not having an active relapse. Some further criteria also apply, details of which are in the information sheet and can be provided by the research team.

 Requirements and commitment required to participate will be sent to anyone interested in learning more about the project.

If you have any further questions or advice or are interested in taking part, please don't hesitate to contact the research team at cobms@nuigalway.ie or 0874491154.”