Upcoming PPI Events @ NUI Galway

 4th National PPI Conference

PPI Ignite @ NUI Galway and The HRB Primary Care Clinical Trials Network Ireland are delighted to co-host the 4th National Public and Patient Involvement (PPI) in Research conference.

The theme of this year’s PPI Conference is “Progressing Together”

This conference will take place on Wednesday 1st May 2019 at the Institute for Lifecourse and Society (ILAS), NUI Galway

Our program includes Derek Stewart (Patient Advocate); Helen Rochford-Brennan (Chair European Dementia Working Group.Board Member Alzheimer Europe); Paul Ryan (Irish Neonatal Health Alliance); Carolyn Jenkins (Medical University of South Carolina), with interactive worksho.ps and more! At the conference you will hear about the many different ways in which the public and patients are working with researchers, to guide and influence research on dementia, Type 1 Diabetes and premature babies and preclinical work  in arthritis.  

Workshop: PPI in pre-clinical and non-clinical research

Derek Stewart, OBE, patient advocate and one of the leading PPI contributors in the UK over two decades is delivering a workshop with PPI Ignite @ NUI Galway on April 30th. This workshop will take place in NUI Galway from 2pm-4pm.

This aim of this exploratory workshop is to get people thinking about WHY involving patients and public is important in these pre/non clinical research and what value it might bring. 

Audience: Researchers, academic staff and PhD students who are interested in using PPI in their pre-clinical and non-clinical research.

Objectives: By the end of the workshop participants will:

  • Understand the definitions of terms such as: Participation, involvement and engagement

  • Be aware of how public and patients can be involved in clinical and laboratory-based research

  • Have explored common challenges to involvement in this research and identified some strategies to overcome these barriers/challenges  

  • Be equipped with knowledge to develop an action plan for PPI in their own research area

For more information and to register click here.

Community Engaged Scholars Programme Funding Call

Applications are invited for the Community Engaged Scholars Programme (CES-P) Pilot,  a new training and education initiative offered by PPI Ignite @ NUI Galway. CES-P aims to increase the capacity of community-academic partnerships to conduct research, underpinned by the principles of PPI, to improve the health of our communities.  Successful applicants will receive formal training via face-to-face workshops and self-paced online learning materials and receive up to €5,000 to complete a pilot research study.  CES-P partnerships will also receive support to write a grant application to apply for funding from an external funder for a larger research project. Closing date for CES-P applications is April 8, 2019 by 5:00pm.  

Details on how to apply are ‌: 

For informal enquiries, please email: ppi@nuigalway.ie

What is PPI Ignite @ NUI Galway?

Funded by the Health Research Board, the PPI Ignite Programme aims to bring about a culture change in how healthcare research is conducted across the University. 

  • Supports health and social care researchers to involve members of the public in meaningful ways across the full research cycle
  • Connects the public and patient and community organisations to researchers who are seeking PPI partners
  • Delivers PPI training and education to researchers and to the public
  • Runs PPI clinics that provide advice on how to get started with PPI
  • Connects researchers to other researchers with relevant PPI experience
  • Helps researchers to evaluate the impact of their PPI activities

The PPI Ignite @ NUI Galway programme is led by Prof Sean Dinneen. View a short video about PPI Ignite @ NUI Galway  here.

PPI Ignite @ NUI Galway Strategy

You can read the NUI Galway PPI Ignite @ NUI Galway strategy.

Previous Newsletters

Read the Winter Newsletter to see a range of the activities we have been involed in.

If you would like to join our email distribution list so that you will receive occasional updates from us, follow this link.

Public and Patient Involvement study day for researchers Feb 27th 2019

PPI Ignite @ NUI Galway ran a full-day PPI study day on 27 February 2019. This day was attended by a diverse group of researchers with varying levels of experience of PPI, who attended one of the two streams on offer targetting at the different levels of PPI experience. Members of the PRIMER group, the Primary Care PPI group at Manchester University, joined the PPI Ignite @ NUI Galway team, which included three PPI contributors from our Public Advisory Panel  to facilitate the study day. 

The feedback from those who attended showcases the success of the day: 

"Excellent workshop facilitation, everyone had a voice!"
"I really enjoyed hearing the PPI representatives share their experiences and their involvement in presenting"
"The facilitators were very responsive to all questions and feedback. Learned a lot, really well planned and facilitated day. 
"Really enjoyed the diversity of participants and facilitators"
 

This study day was funded through the HRB Conference and Events Sponsorship scheme.

Support from PPI Ignite @ NUI Galway during grant application writing

The PPI Ignite @ NUI Galway programme office provides supports to Principal Investigators/researchers across NUI Galway  when planning for or when drafting a grant application. Support is provided to researchers from any discipline where the research includes outcomes that impact human health.  We encourage  researchers to email us (ppi at nuigalway.ie) early in the planning process and when appropriate, we will schedule a PPI clinic to provide support on PPI aspects of the research.

EMPOWER workshops - a PPI education day for the public

On Saturday 6 October, NUI Galway hosted an information and education day, for the public, with a series of free workshops introducing PPI and developing skills useful to enable the public to partner with researchers, guiding and influencing their research. The workshops were very well attended, with attendees travelling from far and wide, and an excellent exchange of information ensued.  Funded by the Health Research Board (HRB), those attending came with very different backgrounds and experiences and there was information sharing and learning for all. A big thank you to all who attended, a number of whom expressed an interest in getting involved with researchers at NUI Galway. We will hold other public events in the future. 

What is PPI (Public and Patient Involvement) in research?

PPI in research means research carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them.  Involvement in research means, for example, activities where patients and members of the public:
•    help to decide what will be researched
•    provide early input into the design of research studies
•    are members of a research study steering committee
•    work with researchers to develop clear, understandable, patient information material  
These activities are distinct from work that is done to raise public awareness of research or to increase participation in research. PPI is also distinct from qualitative research.

Public and patient involvement in research can be described across a spectrum of involvement. At the lowest end of the spectrum, researchers inform the public about their research – this is called engagement rather than involvement.

The degree of involvement rises when researchers consult with the public about research, to more active involvement of the public and patients in research decision making. In PPI, the ultimate goal is to develop equal partnerships between public and patients, researchers and other stakeholders (eg health care professionals), with the partners working together with joint decision-making on all aspects of research, from setting research questions to dissemination of research results and impacting policy. 

What does PPI not include?

PPI does not include:
•    the recruitment of study participants. This is participation in research.
•    work aimed at raising awareness among the public around research, such as open days, public lectures or education events with schools. This is engagement with research.


Why is PPI important?

Patients draw on their lived experience and make judgements based on their understanding of their condition. The contributions of patients, carers or other members of the public provide alternative views from those of the research team, doctors or other healthcare professionals. Patients are experts by experience, living with a condition: she who wears the shoes, know where they pinch.  They may have different aspirations and thoughts about health outcomes that healthcare professionals and researchers may not have considered.  

For more information about PPI, who do I contact?

Edel Murphy
PPI Ignite Programme Office
Room 1037
Institute for Lifecourse and Society (ILAS)
NUI Galway

E: ppi@nuigalway.ie
T: 353 (0)91 495743
 Twitter @PPI_NUIG

PPI

NUI Galway Conference Puts the Voice of Patient First in Healthcare Research

In April 2018, the HRB Primary Care CTNI, led from NUI Galway, held the third annual PPI in healthcare research conference, focusing on the theme, ‘Every Voice Matters’. Check out the HRB Primary Care CTNI web site for the presentations from the conference.