PPI Ignite Network @ NUI Galway

We are delighted to announce that a new team is in place to guide the PPI Ignite Network @ NUI Galway. 

Dr Ruth McMenamin and Professor Martin O'Halloran now co-lead the PPI Ignite Network @ NUI Galway and Martha Killilea is the new programme manager. Follow their activities @PPI_NUIG

Former lead, Professor Sean Dinneen, now leads the PPI Ignite Network, a national network of 7 Universities, 10 national partners and 53 local partners and Edel Murphy, previously the programme manager at NUI Galway is now the national programme manager. Follow the PPI Ignite Network @PPI_Ignite_Net

   

NUI Galway PPI in Research Awards Winners

PPI Ignite @ NUI Galway are delighted to announce the three winners of the inaugural NUI Galway Awards for Public and Patient Involvement in Research Excellence. Our Public Advisory Panel co-developed this award scheme with the PPI Ignite @ NUI Galway team and our selection panel consisted of four PPI contributors and two reseachers.   

Our selection panel was very impressed with the high standard of the entries both from PhD students and from research and academic staff working with PPI contributors in very different and innovative ways.

 And the winners are.... 

Joint winners of the inaugural PPI Excellence in Research (click on the links to find out more): 

  • My Comrade+ PPI panel (Ms Nan McCarron, Ms Katie Baxter, Dr Morris Brown, Mr John McCosker) and the research team (Collette Kirwan, Lisa Hynes, Emma Carr, and Andrew Murphy)
  • COB MSembedded patient researcher Robert Joyce, Patient Advisory Panel (Ruth Court, Claire Lyons, Deirdre Dolly, John Dolly, Finbarr Dillon) and research team (Dr Sinéad Hynes, Dr Christopher Dwyer, Fionnuala Rogers, Anusha Moses, Eimear Bane, Robert Joyce)

The winner of the PPI Excellence in postgraduate research is:

A huge congrats to the winners! Check out the case studies and hear from the teams themselves. 

Details of the PPI Excellence in Research award scheme is available here.

Publication: Irish ME/CFS Association parnter with an NUI Galway health economist

We are delighted to announce the first output from our pilot Community Engaged Scholars Programme has been published. 

Cullinan J, Ní Chomhraí O, Kindlon T et al. Understanding the economic impact of myalgic encephalomyelitis/chronic fatigue syndrome in Ireland: a qualitative study [version 1; peer review: 1 approved]. HRB Open Res 2020, 3:88 (https://doi.org/10.12688/hrbopenres.13181.1)

PPI Seminar: Five positive outcomes from integrating PPI in our research - Experiences from a feasibility trial in multiple sclerosis (COB-MS)

On November 24th Dr Sinéad Hynes and Robert Joyce delivered a seminar as part of the Public Health and Health Service Resarch seminar series. During this presentation Sinéad and Robert also discuss emplying a PPI contributor as part of the resarch team for the COB-MS project.

Watch the seminar back here.

Appointment of Derek Stewart as Honorary Professor at NUI Galway 

‌The College of Medicine, Nursing and Health Sciences in NUI Galway appointed Professor Derek Stewart OBE an Honorary Professor for his work as a patient advocate involved in health research. Derek Stewart has made significant contribution to Public and Patient Involvement (PPI) in research in the UK, holding many important roles over the years and was awarded an OBE in 2006 for services to health, in particular cancer care. Prof Stewart is recognised internationally as a public involvement champion and brings meaning and insight into the value of PPI for research. In recent years, Prof Stewart has played a key role supporting the development of PPI in NUI Galway, running workshops and presenting at our PPI conference in 2019, as well as working directly with the PPI Ignite @ NUI Galway team.

Look back at Prof Stewar's inaugural lecture, a series of personal tributes and a stimulating Q&A, recorded on Wed 4 Nov 2020 to celebrate the appointment. You may also like to read a press release about this appointment.

The Patient Effect

We are delighted to announce that the world preimere of the The Patient Effect, selected as the Science on Screen commission for 2019,  was a great success.

The documentary tells the story of Public and Patient Involvement in Research - how tapping into the lived experience of patients, their families and carers, has the potential to hugely enhance the quality and relevance of health and medical research.

Directed by Mia Mullarkey, this Irish documentary follows three personal stories, which reflect the power of including public and patient voices in planning and conducting researchPaul Ryan, father to Sophia who was born premature at 25 weeks, is contributing to a majorresearch programme called NEPTuNE – exploring the most effective methods to monitor and manage babies with neonatal brain injury.  Cameron Keighron lives with type 1 diabetes and has been heavily involved in developing a new way of delivering healthcare to young people with diabetes. Connecting up with Margaret Devaney and the Swinford Arthritis Walking Group has provided first-hand insight of the impact of chronic pain on their day-to-day life to medical device developers at NUI Galway, inspiring the latter in their research endeavours

Previous Screenings:
  • Joint North Rare Disease Conference Day, Belfast 
  • Documentary Premiere, Pálás Cinema Galway
  • Community screening at ARD Family Resource Centre, Doughiska
  • Grand Rounds, Galway University Hospital, NUI Galway
  • Human Biology Building, NUI Galway
  • D1 Now Young Adult Panel PPI meeting, NUI Galway
  • Doughiska Active Retirement Group, ARD Family Resource Centre, Doughiska
  • Royal College of Surgeons in Ireland
  • J.E. Cairnes School of Business & Economics, NUI Galway
  • Clinical Research PPI Working Group meeting
  • Health Research Board seminar
  • Institute of Lifecourse and Society, NUI Galway
  • Retired Staff Assocation, NUI Galway
  • Health Research Charities Ireland (HRCI) PPI in Industry-led Research
  • Royal College of Physicians of Ireland, Person Centred Care Symposium

If you are interested in co-hosting a screening of The Patient Effect  contact Martha Killilea.

Recent PPI Ignite @ NUI Galway Newsletter

Catch up on the latest PPI Ignite @ NUI Galway activities in our recent newsletter.

You will find all previously published newsletters here.