Pictured at NUI Galway to discuss Dementia Care Support in Ireland were l-r: Professor Suzanne Cahill, TCD, Professor Steven Sabat, University of Georgetown, US, Professor Eamon O'Shea and Dr Patricia Carney, Centre for Economic and Social Research on Dementia, NUI Galway. Photo: NUI Galway
Nov 28 2017 Posted: 16:01 GMT

The Centre for Economic and Social Research on Dementia at NUI Galway is hosting a number of experts in dementia from across the world this week to speak to early career researchers about issues in dementia care, and helping to grow capacity and leadership in the dementia sector in Ireland and internationally.

The Centre for Economic and Social Research on Dementia carries out cutting edge research in economic and social areas to help improve the lives of people with dementia and their families. It is hoped that by generating evidence through research that the quality of life for people with dementia and their families can be improved, enabling them to remain living well at home for as long as possible.

It is estimated that there are about 55,000 people living with dementia today in Ireland. This number is likely to double in the next 15 years to over 100,000 people. The total economic and social cost of dementia in Ireland is estimated to be just under €2 billion per year.

Most people with dementia live in the community where access to services and supports often depend on where the person is living. Research shows that better services and supports in the community can enable people with dementia to remain living at home for longer.

Issues of how to best respond to the challenges and opportunities of an ageing population were addressed by the Citizen’s Assembly earlier this year. Professor Eamon O’Shea, Director of the Centre for Economic and Social Research on Dementia, addressed the Assembly last June and spoke about the sustainability of the care system in the longer term for an ageing population. Research conducted at the Centre will address some of the questions raised by the Citizen’s Assembly in relation to the care of older people in Ireland, particularly in relation to the funding of long-term care.

Engagement with people with dementia, their families and carers is central to the work at the Centre. Professor O’Shea describes the importance of this engagement as, “the views of the person with dementia and their families on the personal experience of living with the disease are key to the success of the work at the Centre for Economic and Social Research on Dementia and can change how we approach and think about the disease.”

There are a number of research projects currently underway that engage with the person with dementia and their families. The Centre at NUI Galway is establishing a Dementia Advisory Forum which will bring together people with dementia and their families to inform the research. Dr Patricia Carney, a researcher at the Centre describes the Dementia Advisory Forum as, “a platform to give people with dementia a voice who want to help set the agenda for dementia research in Ireland and bring about change.”

If you would like to take part in any aspect of the research or find out more about the ongoing work at the Centre for Economic and Social Research on Dementia, visit: www.cesrd.ie

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